HEALTHCARE
The Waiting Room Podcast
Season 3
About This Season
Welcome to season 3 of The Waiting Room podcast! We continue to speak with experts and advocates from the world of healthcare. The first episode focuses on skin cancer and its prevention. It is followed by a two-part special feature on inflammatory bowel disease and how especially children and young adults living with IBD can be helped. Lung cancer and the 20th anniversary of the European Patients’ Forum are among the other topics of this season.
All Episodes
Episode 8 - Psoriasis Action Month with Elisa Martini and Helen Crawford (IFPA)
For this episode of Karger’s The Waiting Room Podcast, we spoke with Elisa Martini and Helen Crawford from the International Federation of Psoriasis Associations (IFPA) about the skin condition psoriasis and the upcoming Psoriasis Action Month in August.
Elisa Martini is IFPA’s Policy and Advocacy Manager and Helen Crawford is both a Board Member of the IFPA and Programs Manager at the Canadian Association of Psoriasis Patients. The IFPA works on behalf of 125 million people living with psoriasis and/or psoriatic arthritis.
Supplementary Material
Episode 7 - “For a Better Tomorrow”: An Interview with Nomsa Mtshali (Rare Diseases South Africa)
For this episode of Karger’s The Waiting Room Podcast, we spoke with Nomsa Mtshali, Patient Community and Rare Assist Manager at Rare Diseases South Africa.
Rare Diseases South Africa is a non-profit organization which aims to assist rare disease patients in receiving access to life-saving treatment and supportive care for improved quality of life.
The Rare Bear Project is a community upliftment program under Rare Diseases South Africa.
Supplementary Material
Episode 6 - Beta Thalassemia with Professor Antonio Piga
For this episode of Karger’s The Waiting Room Podcast, we spoke with Professor Antonio Piga about thalassemia, which is an inherited blood disorder, and one of the two main types called beta thalassemia in particular.
Professor Piga is Professor of Pediatrics at the University of Turin, Italy. Furthermore, he is the author of the recently published Fast Facts for Patients booklet “Beta Thalassemia”, which is freely available online.
Episode 5 - “A Strong Patients’ Voice – The European Patients’ Forum”: An Interview with Anca Toma (Executive Director EPF)
For this episode of Karger’s The Waiting Room Podcast, we spoke with Executive Director Anca Toma about the 20th anniversary of the Patients’ Forum (EPF) and its future goals.
The EPF is the leading voice of patient organizations in Europe. 20 years after its founding, EPF occupies a unique position as the only cross-disease umbrella patient organization at the European level.
Supplementary Material
Episode 4 - “No ‘One Type Fits All’ in Lung Cancer Treatment”: An Interview with Dr Anne-Marie Baird (Lung Cancer Europe)
For this episode of Karger’s The Waiting Room Podcast, we spoke again with Dr Anne-Marie Baird, who currently serves as the president of Lung Cancer Europe (LuCE). She is a Senior Research Fellow at Trinity College Dublin, Ireland, and a patient advocate. In this episode we are going to focus on non-small cell lung cancer, genetic predisposition, biomarkers and treatment.
Episode 3 - World IBD Day with Jen Rose (Part 2)
For this episode of Karger’s The Waiting Room Podcast on World IBD Day on May 19, we spoke with Jen Rose, who was diagnosed with inflammatory bowel disease (IBD) 33 years ago. She offers emotional support to newly diagnosed IBD patients and their families and is the author of the coloring journal "Me (and IBD)".
In the second episode of our two-part special we talk about the creation of “Me (and IBD)” and Jen’s plans for future updates and add-ons. In addition, we are looking at the aspect of mental health and what it takes to become a powerful patient.
Supplementary Material
Episode 2 - World IBD Day with Jen Rose (Part 1)
For this episode of Karger’s The Waiting Room Podcast on World IBD Day on May 19, we spoke with Jen Rose, who was diagnosed with inflammatory bowel disease (IBD) 33 years ago. She offers emotional support to newly diagnosed IBD patients and their families and is the author of the coloring journal "Me (and IBD)".
In the first episode of our two-part special we focus on what IBD is, what to look out for in terms of symptoms and diagnosis, and what it is like to live with the condition based on Jen’s patient journey. The second part of the interview will be published on May 18, 2023.
Supplementary Material
Episode 1 - "Look after Your Largest Organ": An Interview with Prof Willie Visser
For this episode of Karger’s The Waiting Room Podcast for World Melanoma Day on May 1, 2023, as well as Skin Cancer Awareness Month in May, we spoke with Prof Willie Visser about the importance of skin cancer prevention and regular check-ups with your dermatologist. Prof Visser is the Head of Dermatology at University of Stellenbosch, Tygerberg Academic Hospital, Cape Town, South Africa.
Supplementary Material
About the Speakers
Prof Willie Visser
Prof Willie Visser is the Head of Dermatology at University of Stellenbosch, Tygerberg Academic Hospital, Cape Town, South Africa. He earned his medical degree from the University of Stellenbosch and completed both his Master’s degrees in Family Medicine and Dermatology at University of the Free State in South Africa. Prof Visser has a passion for medical education and teaching. His research focuses on inflammatory skin diseases and skin cancer, especially in patients with skin of color.
Jen Rose
Jen Rose was diagnosed with inflammatory bowel disease (IBD) when she was 10 years old, 33 years ago. She is currently training to be a psychotherapeutic counsellor and offers emotional support to newly diagnosed IBD patients and their families. Furthermore, Jen is the author and illustrator of “Me (and IBD)”, a coloring journal that was designed to reach and support young people with IBD.
Dr Anne-Marie Baird
Since 2020, Dr Anne-Marie Baird is the president of Lung Cancer Europe (LuCE). She is a Senior Research Fellow at Trinity College Dublin, Ireland, and a patient advocate. As a cancer molecular biologist, she researches inflammation and immune mediators, metastatic cascade, drug resistance and disease biomarkers. As a patient advocate, she is involved in many patient councils, steering committees and advisory boards.
Anca Toma
Anca Toma joined the Patients’ Forum (EPF) as Executive Director in March 2022. She has over 15 years of experience in European health policy, working in policy advocacy, strategic communications, developing and coordinating successful pan-European advocacy campaigns.
Prof Antonio Piga
Professor Antonio Piga is Professor of Pediatrics at the University of Turin, Italy, and the author of the recently published Fast Facts for Patients booklet on “Beta Thalassemia”, which is freely available online.
Nomsa Mtshali
Nomsa Mtshali is Patient Community and Rare Assist Manager at Rare Diseases South Africa.
Elisa Martini
Elisa Martini is the Policy and Advocacy Manager of the International Federation of Psoriasis Associations (IFPA) and is thus responsible for developing and implementing IFPA’s advocacy and policy strategies at a global level. She has a Master’s degree in pharmaceutical sciences and a Ph.D. with a focus on psoriasis.
Helen Crawford
Helen Crawford is both a Board Member of the International Federation of Psoriasis Associations (IFPA) and Programs Manager at the Canadian Association of Psoriasis Patients. She is committed to patient engagement and has participated in several patient advisory boards. Furthermore, she has a degree in Linguistics from Carleton University and a Certificate in Social Media from Algonquin College.
Other Seasons
Season 1
In season 1 of The Waiting Room we speak with a wide range of experts and advocates from the world of healthcare. We cover several World health days including Rare Disease Day, World Cancer Day and World Obesity Day as well as learn more about specific conditions including progressive familial intrahepatic cholestasis and natural processes such as menopause.Season 2
In season 2 of The Waiting Room we continue to speak with experts from the world of healthcare. Two episodes focus on the work of the UK enterprise Diversity and Ability (D&A), and a two-part special feature covers the rare disease Waldenström macroglobulinemia. Suicide prevention, health literacy and lung cancer are among the other topics of this season.